The Real Cost of Lyme Isn't Just Medical

It’s the invisible price tags no one prepares you for.

Lyme doesn’t just take your health.

It takes things you didn’t even realize were on the line.

Your plans. Your pace. Your ability to trust your body.

And sometimes—your sense of self.

It’s not just about the meds, or the lab results, or how many protocols you’re juggling.

It’s about all the quiet losses that never make it into a treatment plan.

Lyme doesn’t just steal your health—it takes the pieces of life you never thought you'd lose, the quiet things that no one ever warned you about.

It costs you moments

The trip you canceled. The dinner you bailed on. The FaceTime you couldn’t answer because stringing words together was too hard.

It costs you the ability to just say “yes” to something without checking in with your body 14 times first.

It costs you being the friend who shows up without needing a nap, an exit strategy, or an emergency heating pad in her bag.

Sometimes, it costs you people.

Not because they’re bad… but because they don’t get it.

And you get tired of trying to make them.

It costs you certainty

You start to doubt your own intuition.

Was it the new med that made me feel worse?

Was it the mold? The supplements? That one bite of chocolate?

You second-guess even the good days.

Because sometimes, a good day is just the prelude to a crash.

So instead of enjoying it, you’re bracing for impact.

You’re not living—you’re constantly managing risk. And let me tell you, it’s exhausting.

Chronic illness turns every choice into a calculation and every good day into a question mark—because surviving starts to feel like a game of chance.

It costs you the version of you who didn't have to think so hard

The spontaneous version.

The social version.

The one who could wake up, throw on jeans, and just… exist.

Now it’s like:

How’s my inflammation today?

Can I tolerate noise?

Will standing too long make my heart race?

Do I need electrolytes, or am I just under-caffeinated and over-emotional again?

It’s wild how many symptoms start to blend together into one giant what the hell is going on.

And through all of it… you still try to be okay.

To smile. To explain. To keep showing up.

But let’s be honest—there’s a kind of grief that comes with this that no one warns you about.

And it’s not just “grief over the old me.”

It’s grief over missed time. Missed joy. Missed normalcy.

It’s the weight of always adapting.

Of pretending you’re okay enough to make everyone else comfortable.

But here's what I want you to know

You don’t have to carry all of this alone.

You don’t have to keep minimizing what this illness has taken from you just because other people don’t see it.

And no—there isn’t a quick fix. But there can be support. Strategy. Space to be honest about what’s actually hard.

📌 That’s what I offer in my 1:1 strategy calls.

There’s no pressure. No need to perform.

Just a space where you can say the whole messy truth and we can sort through what you actually need.

Book a free call here

If you’re feeling heavy, frustrated, or like nobody really gets it—

I promise you’re not alone.

And you’re not crazy.

This is just really hard.

But you’re still here.

Still trying.

And honestly?

That counts for so much.

💚

Samantha

Certified Life Coach | Lyme & Chronic Illness

You don’t have to go through this alone—I’ll hold space for your silence, your strength, and everything in between.